Rare Disease Awareness Day

Rare diseases affect a small percentage of the population. Collectively, they impact millions of people globally. Launched in 2008 by Rare Diseases Europe, Rare Disease Awareness Day is observed on the last day of February. 70% of rare diseases start in childhood, and 72% of rare diseases are genetic. The proper treatment and diagnosis are still a struggle for rare disease patients as the conditions are not well understood. Stories narrated by individuals burdened by such rare diseases motivate others and testify to their strength and resilience.